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FEBRUARY 9, 2024

Speeding Referrals for All Infantile Spasms

By PPN News Staff

Prompt diagnosis and referral to a neurologist are essential for the proper care of infantile epileptic spasms syndrome (IESS), but research suggests infants are likely to experience delays in referral to a neurologist if their families are from marginalized racial/ethnic backgrounds. 

A study identified 100 children at Boston Children’s Hospital with new-onset IESS diagnosed between 2019 and 2022. The researchers found that children with Black, Indigenous and People